Disability Living Allowance.

DISABILITY LIVING ALLOWANCE (DLA) Claiming benefits can be a complicated and stressful experience. This information will hopefully help you to check if you are potentially eligible. It will help you consider some of the things you need to consider before and during and after your application process. Links to useful agencies and other resources can be found in the “Link’s” section. Each section within this information is based on general terms and conditions and is not just about receiving artificial nutrition or a specific condition as there are too many situations to cover. You will find clear and helpful hints to enable you to consider making an application and some of the issues you may wish to consider during your claim.. The more detailed information and the current points of law can be found on the Governments websites shown in the Links section of this website. Please check these carefully for issues relating to your circumstances and benefits claims. We cannot cover every possibility here as this is a general information resource about Disability Living Allowance and not specifically for each individual claimants needs.

There is no way of telling you if you will be able to claim with certainty. No responsibility can be taken for claims which are not successful due to any information on this site. It is provided as a supportive piece of information. Please seek professional advice and assistance should you require this to complete your claim.

I have a disability and so please can you tell me if I can claim DLA? We cannot tell you that the Department of Work and Pensions will give you any particular benefit. However, if it appears that you fulfil the criteria and wish to make a claim you can do so, either on your own or with help of an agency with specialist advisors such as the Citizens Advice Bureau. The money is paid at different rates depending on how much help you are assessed as needing.For personal care – things like difficulty with dressing or getting to the toilet through to managing your artificial feeding or cooking a main meal..There are three levels of money payable for this allowance either the low, middle or high rate. This will depend on how much attention and assistance you require during the day and throughout the night. Requiring artificial nutrition does not automatically entitle you to any benefits. The claim is for your own personal care needs and it will depend on how your underlying conditions affect you and your abilities not your need for a tube or line being in place. The need for help with activities such as shopping and cleaning will not count towards your claim although you can describe the difficulties within your form.For mobility – this is focusing on how you can move around outside and also about being able to move around safely outside. Things such as pain and fatigue are relevant here. There are two levels of award; low and high rate.To claim Disability Living Allowance for an adult you need to · Be over 16 years of age (please see a more detailed section if you are considering claiming DLA for a child) and under 65 years when you make your first claim..· Need help with personal care and/or mobility due to a physical or mental health condition.· These needs for care can be during the day, during the night or both.· Have had these needs for at least three months and not be expected to improve or be fully well within the next 6 months. Please remember that· You do not need to actually have a carer or provide an account for how you use this money if it is awarded. · There are special rules for people who have been told they are not expected to live for more than six months. This will mean you can claim your benefits more quickly and more easily. · The award is made for your need for personal care and a separate award for problems with mobility outside. You can be awarded one and not the other or both possibly for different levels of need.

Don’t forget to keep a copy of everything you send to the Department of Work and Pensions. If for any reason you make a telephone call please ask who you are speaking too and where they are based e.g. which office. Keep a record of this in your claim file.

I am over 65. Can I claim? People who are over 65 years when they make their first claim can consider applying for Attendance Allowance. This benefit is payable for · People who need extra help with personal care during the day · People who need extra help with personal care during the day and the nightPlease remember that· As with DLA you do not actually have to have a carer to receive this money · You cannot get this allowance and DLA! · If you are already claiming DLA you will continue to receive this as long as you are entitled to it past the age of 65. I have savings and other income. Will this matter or stop me claiming? Disability Living Allowance is not means tested. The result of your claim can only be made by the Department of Work and Pensions, however, your income or savings should not matter. I have some days where I am OK and other days which are terrible. Does this matter? In general it won’t matter but you need to make sure that the claim pack you fill in gives the full picture of how your condition and need for personal care affects you. The benefit is not paid because you have a certain condition. It is payable because of how your condition/s and the care you require affect you each day and/or night. If for example you have days where your pain is severe and perhaps your treatments and need for help and support vary you will need to say this on your form and write about your worst days in detail. There is no room for error though as the information will be checked by a visiting Dr or a report from your care teams. It can also be cross referenced to other benefit claims you have made I think I might be eligible. What should I do? You can phone the free phone Disability Benefits helpline 0800 88 22 00 and ask for a claim pack.You can also apply online via the direct.gov website. You can contact your local Job Centre Plus who can also assist you. The sooner you ask for a claim pack the sooner you will have the help if you are eligible so please do not delay!Don’t forget to keep a copy of everything you send to the Department of Work and Pensions. If for any reason you make a telephone call please ask who you are speaking too and where they are based e.g. which office. Keep a record of this in your claim file.
There seems to be so much I would need to tell them about my needs. How will I remember it all? It is very useful to start a diary now! Do it as soon as possible as the more information you collect the easier the form completion will be! If you choose to have help with completing your forms don’t forget to take the diary with you! Time yourself doing everyday tasks such as walking along the road for short distances and keep a note of these activities How far can you walk? How far can you walk without pain? Do you feel safe outside, need support from somebody else to stay safe or would go out more often if you had this support? Are you in short of breath? Do you get dizzy? Think about when you are in pain, too tired to carry on a journey, unable to get to a destination or need to go home sooner than you would have liked because of pain, fatigue or whatever your problem is. If you have problems with hearing or vision do these affect how you manage when you are out and affect the help you require? Think about things you struggle with such as wearing clothes with lots of buttons and write about how hard that might be now. Can you manage to out on your shoes? Do you need to wear different clothing or footwear now for some reason – if so say why and what you might need to use to help you.Think about things such as how long it takes you to set up your feed equipment and what is important within this routine. Do you need help and why is it essential you have this help? Make your diary as detailed as you can thinking about every activity you need to do each and every day from getting up through to going to bed. Keep these notes for when your forms arrive. It can also be helpful to chat to somebody close to you about your claim. If you have other people at home ask them to think about all the things you need help with that they possibly do automatically now and you have almost forgotten could have been part of your usual routine! Think about the changes you might have made such as only having a wash when really if you had the energy and the help you might have enjoyed a bath. Maybe, if you can eat ,you get by with easily prepared meals rather than cooking a full main meal with fresh ingredients. All these things matter and so start thinking about them all now! Do not assume that anything is too trivial to mention. Remember the person dealing with your claim will only be able to base it on you and your situation! The information you provide can and will be checked through either a report from your Dr or a visiting Dr.If you refuse a medical your claim can be refused. I try to manage and so what sort of things should I tell them about?

Please note that these are only examples – you will have your own routines and needs.
The information you provide can only be about your needs, as you see them and in your own words.
If you choose to have assistance with filling in the form ensure you know every part of what has been written about you as you have to sign this to say it is true and fines can be imposed for false information.
Try not to use abbreviations and make sure you answer every section!
To fill in a Disability Living Allowance form correctly you need to allow at least 2 hours once you have all the information from your diary ( see above)
You need to be prepared to give the information again and again so if you feel you are repeating yourself this is what they want! Fill in each section with every scrap of information that you have. Assume nothing! The decision makers do not know you!

Perhaps you can manage to set up your feed alone but if you had help things would be easier, safer and possibly cause you less fatigue and pain. You will need to explain in detail what you need to do and why. You will need to explain all of the risks and possible dangers if things are not completed properly for you (not others only you!) Would it make you more unwell? At risk of infection? Tell them exactly what it is you have to do and all of the dangers if you do not do this. You can enclose evidence and so maybe you have a feed regime from your care team which you can copy and send to them to support your application? Describe any past incidents that could have had or did have serious consequences if you hadn't had help. Remember everything you say can and will be checked so make sure it is a full and accurate description to assist the decision makers and yourself! If you cannot have a bath or shower on your own, it is reasonable to say you need help with this activity seven days a week. You need to make it clear what you think might happen if you didn't have supervision or someone keeping an eye on you.If you might need to wash and change your clothes more frequently than many other people do please say why and explain the circumstances.IF you need help but are left alone for long periods and maybe feel more vulnerable put down on the form what you fear might happen if you were left alone for long periods.If you have fits or falls describe what happens as vividly as you can and how you cope afterwards. Falls are highly relevant. Describe how your carer or friend has helped you in the past after a fit or a fail. Always describe in detail what happens to you during the night and how you might have to be helped. For instance, help with your feeding regime if things go wrong or maybe the pump fails to work – how would you manage and what would you need to do? Maybe you need to be helped to the toilet? Does this involve being helped out of bed, helped to the toilet, moving safely with your feed equipment maybe? Does your carer need to waiting to help you back into bed and making sure you are comfortable? Does the bed need to be changed or your nightclothes need to be changed? This can take quite a few minutes each time, so make sure the Decision Maker knows as much about your case as you do! If you need help with medication during the day and the night describe what might happen if you did not get it. Maybe you have a stoma or catheter? Tell them what you need to do on the form because you need to give all of the details. It is sometimes hard to write about these issues but if you do not tell the full story the people deciding on your claim cannot fully understand what your needs are. Just because they have heard these things for another claimant they will not automatically assume you need help or support with these things unless you tell them. Do you always know when your condition is getting worse? If not what might happen? How could care and support assist you?If you can eat , can you cook a main meal using fresh food once you have the food at home? The need for help with shopping is not seen as a “care need” and whilst there is space to talk about things you can need to do this does not count in this section re cooking! Can you manage to stand for long enough to peel and chop vegetables? If you need to sit down then say so and why! Can you lift heavy pans and dishes in and out of the oven safely? Can you lift the kettle? Think about pain, weakness, fatigue and safety! Do you need help with medical treatments? Can you manage to open medication packets, bottles, syringes etc? If not say what the difficulties are? What will happen if you do not have this treatment? If you need to take medication at night remember to tell them about the whole routine if this is not just swallowing a tablet! You need to describe the whole regime maybe details about preparing syringes and all that is involved in your care needs. What would happen if you took short cuts or made a mistake? The decision makers will not know how this affects you and your life! Maybe you are having a visit from the district nurse, physiotherapist or even an alternative therapist regularly? Will you need to go back to bed for this treatment and maybe the effort of getting undressed again will be a problem – say so. Again remember they won’t know unless you tell them how all these things affect you and you alone! Can you move around safely with your feed equipment? Is there a problem with this during the day and /or at night? What do you need to do when you go out? How do you manage this safely? Tell them as they will not know what you use and why! Mobility Outside –

This is a separate assessment and any money which is awarded is separate from your personal care needs.

How do you manage your feed equipment if you need to use this when you are out? If this affects your ability to walk in any way then say so in this section too. Do not assume they will know this happens and that you need to have your feed whilst walking outside! Do you walk extremely slowly, only for very short distance or is the effort of walking dangerous for you in some way?Does your ability to walk vary during the day?Do you feel dizzy, sick or get breathless? Do you fall over? Are you in pain? Do you need to take medication because of the increased pain? How do you manage this and do you get side effects from the medication which might make you sleepy or any other side effects you might experience. Do you use any aids to help you walk? Do you use a wheelchair? Does this mean you can only go out when there is somebody to help you/push you etc? Do you go out alone? If not, why not? Are you afraid, get scared in crowded public places? Do you need to limit your time outside or away from home due to the practical issues of carrying supplies or needing to return home to change feed bags/bottles or charge your feed pump? Unless you give all the information about your needs they will not know! Just because others have claimed before you does not automatically qualify you for any benefits. It will depend on how you are affected, what you tell them and the reports from your Dr Consultant and possibly a visiting Dr from the Department of Work and Pensions. I am filing in the form for my child. What should I know? Any ill or disabled child may qualify for disability living allowance. To make a successful claim for Disability Living Allowance you will need to provide information to show the decision makers that your child needs a lot more attention or supervision than other children of the same age who are not disabled.

We strongly recommend that you seek specialist advice from your child’s care team, social worker or another health care professional about the needs of your child and the claim. Any well established welfare rights organisation such as the CAB will also be happy to advise you and assist you with a claim pack for your child.

Your child will also need to have had extra care or mobility needs for at least three months and be expected to have them for at least six months more. This means the earliest the Disability Living Allowance care component can be paid from is aged three months.

For children who have a terminal or life limiting condition there are ‘special rules‘. This means the care component of the DLA benefit can be paid from birth. Your child’s care team will be able to advise you on what to do and how to claim this money. Please ask them as soon as possible for assistance.

You need to be prepared to give the information again and again so if you feel you are repeating yourself this is what they want! Fill in each section with every scrap of information that you have. Assume nothing! The decision makers do not know you and will not know about your child’s needs even if other people with similar situations have applied successfully!

Remember the payment of Disability Living Allowance is not related to your child’s condition or the fact they require artificial nutrition. The money is awarded because of their care needs and / or mobility needs.

Nothing is too trivial. Keep a diary for a week or so before completing the forms. Note down all the things you do and the help and care your child needs! We often do things automatically and consider it “normal” because we do things every day and night! Unless you tell them on the form they will not know the needs and difficulties your child faces each day and night.
To fill in a form correctly you need to allow at least 2 hours if not longer to complete all sections.

Mobility DLA for childrenIf your child is aged 3 years or over and has any difficulties with mobility it might be possible to have extra money from the mobility component of Disability Living Allowance. If your child is over the age of three and is unable to walk or has severe problems with walking then it is worth making a claim. If your child is over the age of 5 and has problems meaning they require extra guidance or supervision when outdoors then please also make enquiries about a claim for the mobility component of DLA. When completing the form, don’t forget to include things like fatigue, breathlessness, pain and equipment required to assist your child’s mobility. Do not think the decision makers will know what is involved in caring for your child and assisting them with their mobility problems. Remember that the older a child gets usually they require less help and so if your child needs a lot of assistance and is younger you need to show in great detail how their needs differ from a child who does not have the same conditions and need for extra help. Does your child also need to carry their feed equipment in their back pack? Don’t think the decision maker will know about this as they won’t! You need to say what preparations you have to make to enable your child to mobilise safely outside as well as the issues surrounding physical movements.Your child might be able to manage parts of their care and mobility needs independently. They do not need to be constantly in need of care from another person to receive the benefit but you will need to ensure you explain what they do and how they manage their condition and the needs they have. You might find some of the information in the adult section useful in this instance. Remember to complete all sections and also do not forget to repeat yourself if that is what the question requires! Don’t assume just because you have written some information once that is OK! You are expected to repeat the information every time they ask the question or similar question! Care Component DLA for children All young children need care and supervision and so for this claim form you need to given every possible detail for the decision makers to see what is required and why you think your child should receive the care component of Disability Living Allowance. Write the form in so much detail they will not be left wondering about any aspect of what you have to do for your child over and above another child of the same age without the same difficulties. Remember they will not pay the money because of a condition or because of the need for artificial l feeding but because of the additional care needs your child has. Does your child need extra help and supervision and care needs during the day? Can they get in and out of bed? Do they need to be helped or encouraged in extra ways to get wash, get dressed, set up their feeding equipment, eat and drink? If they cannot eat and drink or need extra help say so. What would happen if they tried to eat and should not be doing so? Remember you know but the decision maker will not know unless you tell them! Does your child need extra care and supervision at night? If so why? Feeding? What happens if the pump alarms ? Who deals with it and how long does it take? What would happen if it was ignored? Extra wet and/or dirty beds? Extra changes of clothing? What about possible risks of infection, the need to monitor their condition and what would happen if this was ignored e.g. a high temperature and what it means for your child if they are unwell. Explain why and what you have to do to care for and keep your child safe all day and all night! Does your child need physiotherapy, speech therapy ,hydrotherapy, play therapy, counselling and behavioural therapy? Say what is involved and what you need to do for your child or what your child needs to do to help themselves and how this impacts on their daily routine. Medical equipment This includes feed pumps and equipment catheters, suction machines, apnoea alarms ,nebulisers , monitoring equipment, blood glucose meters, needles for injections or blood tests, thermometers, catheters and oxygen Tell them about any difficulties you have or your child has with using any of the equipment, and the length of time each treatment takes and when this happens e.g. during the day and at night if required. Include time spent on preparing and cleaning equipment and what would happen if you did not do this correctly /at all! It will help if you can provide reports from anybody who has assessed your child. This might be related to school, physiotherapy , speech and language therapy , respite care and anybody who knows your child well. The more information you can give the better and the easier the whole claim process should be! Don’t delay sending in your forms by the date they state for return though or you could loose out on some money.

Don’t forget to keep a copy of everything you send to the Department of Work and Pensions. If for any reason you make a telephone call please ask who you are speaking too and where they are based e.g. which office. Keep a record of this in your claim file.
Provide as much supportive information as you can and ask others for statements as shown on the forms. Relatives and other carers can also provide statements for your child’s claim.
Ensure you provide the details of health care team members who can comment on your child’s needs. You can also include education staff and group leaders from extra activity groups your child is involved in. The more information they are given the easier it is for the decision makers to assess their needs. Don’t forget to label anything which is an additional sheet and keep a copy too!

I have been given several aids for independent living and/or I have had adaptations at home to help me cope. Does this matter? You will need to fill in the form and answer the questions which ask if you have anything you use to make things easier. Think about this carefully and you need to explain how the aids or adaptations help you and who suggested them /provided them/ fitted them. Remember that aids and adaptations do not take your underlying condition away and you will probably still have care needs and/or mobility difficulties. There might be assumption that aids to independent living solve all the problems but if you still have difficulties despite the aids you will need to say why and what help you need. If you have had an assessment from a physiotherapist or occupational therapist you need to send a copy of this with your claim form. List it as being enclosed with your claim and make sure it has your name and national insurance number written on it if at all possible.I have several conditions. Will this affect my claim? You do not receive DLA because of a condition or one treatment need. You must have specific needs with personal care and or mobility. The need for attention for personal care can be both during the day and/or at night. Please describe in full detail all of the information about every part of your life and do not think anything is too trivial. If you leave out a part of the information it might affect your claim and so you might miss out on the money which is due to you. If your underlying conditions have their own websites and support groups you might find information about specific things to consider when making your claim there. Remember you are the expert in your needs and so now you need to become an expert in explaining this to somebody who possibly has never heard of artificial feeding methods and other needs before! Will they give me the money for life? The Department of Work and Pensions can review any claim and so you might be asked to send in new information after a set time or they might just review your claim at random. The length of the “award” will be detailed in the letter. They will send new forms to be completed up to six months before the “award” will run out. There is no guarantee they will give you the same level of benefit the next timeIf I get Disability Living Allowance can I get any other money as well? Once your money is awarded please tell your local benefits office as there can be extra money for some people depending on their other income and benefit awards. You can read about this on the Department of work and pension’s website or Direct Gov or call the free phone helpline on 0800 88 22 00. Will I need to provide proof that I have these problems?The short answer is yes! The form will ask you to provide details of your GP, hospital consultants and other staff who look after you. If you have reports which might be helpful in providing evidence send in a clearly marked copy of these statements. The forms also ask for a statement from a person who knows you well and so you need to ask for this to be completed. It is better if you can do this before you send the forms in and not have parts of the forms separated when they are sent in! If they cannot make a decision based on all of the evidence you might be asked to have a medical. This will usually be a Department of Work and Pensions Dr who will make an appointment to visit you at home. You can have a friend or family member with you. You also can ask to have a female Dr although this might in some cases delay your claim if one is not readily available!. You could consider telling them this need on your form when you send in your claim. You can also tell them if you have specific needs re the time of day or the need to arrange an interpreter etc. They are there to help you but you can help them by stating any specific needs should this need to be arranged! I am going into hospital or a care home. What should I do? Will my money be stopped? It will depend on your individual circumstances including age e.g. over or under 16 years You will need to let the DLA benefits office know if your circumstances change including times spent away from home in any care setting. At an already stressful time there is so much to think about! It is important to let them know as your money might need to be adjusted during this time. There are different rules depending on how long you are away from home and so please check the Direct Gov website and with the benefits offices too! If you have any specific questions you can also ask questions via the benefits enquiry line or a welfare rights agency such as the CAB. Don’t forget to tell them when you come home! I receive Disability Living Allowance. My needs have changed – I feel I am worse now than when I first made my claim. We are sorry to hear you feel you have deteriorated. If you haven’t already done so maybe its worth checking nothing else can be done to assist you by contacting members of your health care team for a review. Remember the DLA criteria show that you need to have been dealing with the care or mobility needs for at least three months and be expected to have them for at least six months. It is also worth remembering that DLA is not paid due to your need for artificial feeding but relates to how your condition/s affects your care and mobility needs. It could be that your feed regime has altered meaning you spend more time attached to your feed equipment or that you need extra help with this regime? Remember to give as much detail and any supporting evidence that you have from your care team and others who support you. This can be family and friends too. You can ask then to look at your claim again. Your circumstances will be reviewed including new reports from your care team and anybody who knows you. It might also involve a medical examination. Once they have reviewed and assessed your situation they will advise you of the outcome of this review. Your benefit rate might stay the same. If your money has been increased they will pay you the new rates and explain these to you. If you have a new increased rate this might entitle you to other extra benefit money and so please make sure you check with the benefits offices if you could possibly be entitled to other benefit income or assistance. Sometimes a review will mean that they make the decision one or both components of your Disability Living Allowance will be lowered. This is because the decision makers feel this is the correct level of benefit for the circumstances you describe. Your medical reports might also show you were previously on a level of benefit inappropriate for your needs. You can appeal against any decision. Information about this will be included within your benefit letters. You can seek advice from a welfare rights agency. I receive Disability Living Allowance and I am a lot better now. What should I do? It is good to hear you are feeling better. Remember DLA is not paid due to your need for artificial feeding but relates to how your condition/s affects your care and mobility needs. It is also worth remembering the DLA criteria show that you need to have been dealing with the care or mobility needs for at least three months and be expected to have them for at least six months. Again as above have you discussed this with your medical /care teams? Any changes in your care and mobility needs mean that the Benefits offices should be informed! They will then review your claim. There might be a change in the rate of money you are entitled to. This might mean that you are paid the same amount or possibly less money. Failure to inform them of changes is, however, breaking the law. The Benefits offices can and will make checks about your claim. This might be from your GP, hospital consultant or in relation to other benefits you are or have previously been entitled too. You can appeal against any decision. Information about this will be included within your benefit letters. You can seek advice from a welfare rights agency.

I think I would like a new car. Can my Disability Living Allowance money be used for this? If you or your child receives a Disability Living Allowance award of high rate mobility for three or more years then the money can be used to pay for a motability car. You will find the current law and regulations about this scheme on the motability website .

People who receive the high rate mobility component can have help with tax exemption if they own a car which is not leased via the motability scheme. Details will be enclosed with your award letter.
It is also possible to use the high rate of Disability Living Allowance towards a powered wheelchair or scooter. Please check with the Motability team helpline for further information and advice.

I have a carer for 35 hours a week. Can they get any extra money for caring for me? It is possible that they might be able to claim carer’s allowance. This is money payable to your carer and not yourself as the “cared for person”.You will need to be claiming either the middle or higher rate of the care component of the disability living allowance. You can read more about this at Direct Gov or seek advice on a claim from a welfare rights organisation. In some cases people are not better off when they claim this benefit and carer’s support organisations will also be able to offer your advice. I work. Can I claim Disability Living Allowance? DLA is not means tested and so your income does not matter. You will need as already stated to show the decision makers you need care and support regarding personal care needs and/ or have problems with your mobility outside. I am leaving Great Britain. Does this matter? Yes! In some cases such as a holiday under 26 weeks long mean you can usually continue to claim your benefits and so again you will need specialist advice! There is a clear section on the law regarding leaving the Country on the Direct Gov website and again welfare rights agencies such as the CAB will assist you if you need their help. If you are claiming other benefits make sure you check the law regarding leaving the Country for these benefits too! Enjoy your trip! I am not happy with the decision about my benefit claim. What can I do?

When they send your benefit letters there will be information about what to do if you are not happy with their decision. There is also information about this on the Government websites including Direct Gov.
Do not delay in taking action and it is usually advisable to seek assistance with your appeal letter and subsequent actions.
Don’t forget to keep a copy of everything you send to the Department of Work and Pensions. If for any reason you make a telephone call please ask who you are speaking too and where they are based e.g. which office. Keep a record of this in your claim file.

We hope this information will be useful to you. Please seek professional advice and support for any further queries and also to check the rapid changes in the beneft claims system. Thank you

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Hello and Welcome!

Written on 03-Mar-2009 by PeggyPeg

Hello and Welcome!

This site provides the extra information to support my blog providing contact and support for people who have a need for artificial nutrition through a tube. You might have heard terms such as NG Tube, PEG tube or PEJ tube.

To find out more about this and all it involves the website will provide some simple guides which you can use in addition to the information provided by your health care team. Nothing should be altered as a result of what you read here or on any of the links provided as part of this site or my blog.

I will be adding more information over the coming days and weeks and look forward to chatting to you again soon.

Thank you.

Chris

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PeggyPeg wrote:

03-Mar-2009 - 13:46

Hello! Please visit my blog at http://www.mypeggypeg.blogspot.com for further information and links to useful agencies and support services. Thank you. Chris

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