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Our next meeting is scheduled for April 25, 2010 at 2:00 PM at the UCONN Medical Center.
Guest Speaker Jennifer C. Jaff, Esq. is an author and attorney committed to the advocacy of rights for the chronically ill.Her CV includes; five years at the Connecticut Attorney General's Office, where she started the health insurance consumer advocacy program and was the lead health care fraud attorney, Capitol Hill lobbyist for reproductive rights and author of “Know Your Rights: A Handbook for Patients With Chronic Illness”.
See our Events page for details, map and calendar.
This is not an event to be missed.
Connecticut Residents with Dystonia
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Welcome to the new Connecticut information & communication nucleus for Dystonia patients. This site is devoted to providing a centralized collection of info for Dystonia research, clinical trials, education and advocation, as-well-as, reinforcement for Connecticut residents with Dystonia. Our site will endeavor to maintain an evolutionary character to remain relevant. The quantity, frequency and variety of usage will drive the content and energy of the site.
Please browse the modules, news feeds, blogs videos , etc., and familiarize yourselves with the limitless flexibility and boundless sources afforded us via this format. Please contact us for more information or with ideas for additional offerings and services. Clicking on any member's name will link you to an email address. Thank you for visiting with us.
Dystonia in Summary
Dystonia is a complex and unpredictable condition of the movement regions of the brain identified by a set of connected muscular symptoms, especially uncontrollable muscle contractions, that develop gradually. These contractions may appear as sudden brief spasms, prolonged contortions, repetitive twisting, or recurring movements that are often painful and disabling. Dystonia can affect a muscle, muscle group or the entire body. There is no cure for most forms. Rather, Physicians that specialize in Movement Disorder Neurology specify medicines, surgery, physical therapy and alternative treatments to reduce or eliminate muscle contractions and pain. Dystonia affects men, women and children of all ages and backgrounds.
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Dystonia CT Members
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Ashley Mleczko
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anne
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Anne Legg
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Beth Pfeil
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tom sullivan
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Earle A. Williams
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greta ls
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Jessica Feeley
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Karen Romano Sztaba
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Larry Stahl
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Linda Walking Woman
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lynne gervais
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Laurel McStravick
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pat
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Pat Haefs
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Pauls Schneider
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Joe Kron
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Michael Sparks
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TIMOTHY INSOGNA
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carol taffs
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Uncle Sparky
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Wendy Smith
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HI EVERYONE HOPE U HAD A GREAT WEEKEND.
I AM 26 YEARS OLD. I GOT DYSTONIA WHEN I WAS 12. I USED TO BE IN A WEELCHAIR THEN A WALKER. I DO NOT NEED THEM ANY MORE. NOW I WALK WITH BRACES ON BOTH LEGS. I ALSO HAVE A BRACE ON MY LEFT ARM..
I ALSO GET BOTOX.
I AM TRYING TO PLAN A WALK. FOR DYSTONIA. I HAVE NEVER PLANNED AN EVENT LIKE THIS BEFORE.
I DO THE MS WALK EVERY YEAR.
I NEED ALL THE HELP I CAN GET
THANK U
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Hi, I am a 20 year old nursing student. The other day I was assigned to participate in a support group. I was diagnosed with dystonia around age 12-13 and have always been interested in talking to other people who have this disorder. I found your website tonight while googling "dystonia + Connecticut." I am wondering how I can get involved in this group and if there are any support groups that I can participate in being held.
Hi lexiesmom! I emailed you some info. Let me know if you haven't seen it. Email from here are a bit "iffy".
Peace & Health,
Sparky
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