Connecticut Residents with Dystonia


Welcome to the new Connecticut information & communication nucleus for Dystonia patients. This site is devoted to providing a centralized collection of info for Dystonia research, clinical trials, education and advocation, as-well-as, reinforcement for Connecticut residents with Dystonia. Our site will endeavor to maintain an evolutionary character to remain relevant. The quantity, frequency and variety of usage will drive the content and energy of the site.

 

Please browse the modules, news feeds, blogs videos , etc., and familiarize yourselves with the limitless flexibility and boundless sources afforded us via this format. Please contact us for more information or with ideas for additional offerings and services. Clicking on any member's name will link you to an email address. Thank you for visiting with us.


 

Dystonia in Summary

Dystonia is a complex and unpredictable condition of the movement regions of the brain; identified by a set of connected muscular symptoms, especially uncontrollable muscle contractions. These contractions may appear as sudden brief spasms, prolonged contortions, repetitive twisting, or recurring movements that are often painful and disabling. Dystonia can affect a muscle, muscle group or the entire body. There is no cure for most forms. Rather, Physicians that specialize in Movement Disorder Neurology specify medicines, surgery, physical therapy and alternative treatments to reduce or eliminate muscle contractions and pain. Dystonia affects men, women and children of all ages and backgrounds.


 

Discovery


≈ May we discover through pain and torment,
 the strength to live with grace and humor.
 May we discover through doubt and anguish,
 the strength to live with dignity and holiness. 
May we discover through suffering and fear,
 the strength to move toward healing. 
May it come to pass that we be restored to health and to vigor. 
May Life grant us wellness of body, spirit, and mind. 
And if this cannot be so, 
may we find in this transformation and passage moments of meaning, 
opportunities for love and the deep and gracious calm that comes 
when we allow ourselves to continue on. 

 

News & Views photos! Add yours too.


 

Our Go-To Sites for the Latest Info!

Dystonia Advocacy Network

The Dystonia Advocacy Network (DAN) is a grassroots organization that brings dystonia-affected individuals together to speak out with a single, powerful voice on legislative and public policy issues which impact the dystonia community.

http://dystonia-advocacy.org/

GoodSearch - Web search, coupons, discounts & deals for charity!

GoodSearch - Search the web to support your charity. Also, find online coupons, coupon codes, deals, discounts and promo codes at GoodShop.

http://www.goodsearch.com/default.aspx

Life in Motion

Do you have a movement disorder? Does your child have a movement disorder? An estimated 40 million Americans are living with movement disorders. One of the greatest challenges they face is obtaining an accurate diagnosis and therapy plan.

http://medlineplus.gov/

MDVU - WE MOVE's Movement Disorder Virtual University

Welcome to the MDVU! The Movement Disorder Virtual University is the healthcare professional's source for movement disorder news, resources and educational activities. Brought to you by WE MOVE.

http://www.mdvu.org/




 

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Uncle Sparky wrote:
04-Feb-2010 - 4:28

Welcome Tim! Where are you holding your walk-a-thon?

slimjimtim83 wrote:
02-Feb-2010 - 0:35

HI EVERYONE HOPE U HAD A GREAT WEEKEND.

I AM 26 YEARS OLD. I GOT DYSTONIA WHEN I WAS 12. I USED TO BE IN A WEELCHAIR THEN A WALKER. I DO NOT NEED THEM ANY MORE. NOW I WALK WITH BRACES ON BOTH LEGS. I ALSO HAVE A BRACE ON MY LEFT ARM..

I ALSO GET BOTOX.

I AM TRYING TO PLAN A WALK. FOR DYSTONIA. I HAVE NEVER PLANNED AN EVENT LIKE THIS BEFORE.

I DO THE MS WALK EVERY YEAR.

I NEED ALL THE HELP I CAN GET

THANK U

Uncle Sparky wrote:
15-Sep-2009 - 1:38

jlc06019... Welcome, your email is on the way.

jlc06019 wrote:
14-Sep-2009 - 2:54

Hi, I am a 20 year old nursing student. The other day I was assigned to participate in a support group. I was diagnosed with dystonia around age 12-13 and have always been interested in talking to other people who have this disorder. I found your website tonight while googling "dystonia + Connecticut." I am wondering how I can get involved in this group and if there are any support groups that I can participate in being held.

Uncle Sparky wrote:
05-May-2009 - 0:55

Hi lexiesmom! I emailed you some info. Let me know if you haven't seen it. Email from here are a bit "iffy".
Peace & Health,
Sparky



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