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Hi, I answered your email but it did not get posted. Still trying ti work my way through this site.I am grateful for every day that I am almost symptom free. I know that I could wake up any day back to where I use to be.
Hi dude62,
Thank you for contacting me! I am very happy to hear from you. You are the first person to tell me a little bit about their journey with ST. I am glad to hear that you are doing well. How long were you treated at Yale? Baclofen and clonazepan are excellent drugs, but very expensive. Many patients that I had last semester at Hospital for Special Care used them for complications with spinal injuries, particularly cervical spinal trauma. They found that the medications worked very well for most people, which is excellent. I am glad to hear they are working for you. Were you concerned at all when you first started taking them?
I am doing fine. I just started a second semester of school, so the ST is acting up with the stress of starting new. I had a nice symptom free month, though during winter break. :-) It was very refreshing!!